{"id":14833,"date":"2024-03-01T12:00:07","date_gmt":"2024-03-01T18:00:07","guid":{"rendered":"https:\/\/www.imer.mx\/programas\/?p=14833"},"modified":"2024-04-03T17:00:57","modified_gmt":"2024-04-03T23:00:57","slug":"enfermedades-raras-odisea-diagnostica","status":"publish","type":"post","link":"https:\/\/www.imer.mx\/programas\/enfermedades-raras-odisea-diagnostica\/","title":{"rendered":"Enfermedades raras: Odisea diagn\u00f3stica"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"14833\" class=\"elementor elementor-14833\">\n\t\t\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-dabebe6 e-flex e-con-boxed e-con e-parent\" data-id=\"dabebe6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-2512993 e-con-full e-flex e-con e-child\" data-id=\"2512993\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-fccc4ff e-con-full e-flex e-con e-child\" data-id=\"fccc4ff\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-f4b46dc e-con-full e-flex e-con e-child\" data-id=\"f4b46dc\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-cabffe7 elementor-widget elementor-widget-image\" data-id=\"cabffe7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.imer.mx\/programas\/bingo\/\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Enfermedads-raras-vg-2-min.jpg\" class=\"attachment-large size-large wp-image-14840\" alt=\"Enfermedades raras: Odisea diagn\u00f3stica - IMER\" srcset=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Enfermedads-raras-vg-2-min.jpg 512w, https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Enfermedads-raras-vg-2-min-300x300.jpg 300w, https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Enfermedads-raras-vg-2-min-150x150.jpg 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-c1aa89f e-con-full e-flex e-con e-child\" data-id=\"c1aa89f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e3d1b1a elementor-widget elementor-widget-heading\" data-id=\"e3d1b1a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.imer.mx\/programas\/bingo\/\">Bingo presenta:<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4aa080d elementor-widget elementor-widget-heading\" data-id=\"4aa080d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">REFORMA LABORAL... DE 3 EN 3<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f64d68b elementor-widget elementor-widget-text-editor\" data-id=\"f64d68b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6794f6e elementor-widget__width-initial elementor-widget-mobile__width-initial elementor-widget elementor-widget-heading\" data-id=\"6794f6e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">SINOPSIS<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-387bdf4 elementor-widget elementor-widget-text-editor\" data-id=\"387bdf4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Por lo menos, 1 de cada 10 mil personas padecen una enfermedad de la que nadie sabe nada. Gran parte de ellas, enfrentan un ambiente de incertidumbre, soledad y muchos sacrificios. En el marco del D\u00eda Mundial de las Enfermedades Raras nos acercamos a algunas personas que viven y tratan con algunas enfermedades desconocidas, y les preguntamos cu\u00e1les son sus procesos para conocerlas, investigarlas y hacerles frente.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d25ec11 elementor-widget__width-initial elementor-widget-mobile__width-initial elementor-widget elementor-widget-heading\" data-id=\"d25ec11\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">EPISODIOS<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-72cd813 elementor-widget elementor-widget-wp-widget-media_audio\" data-id=\"72cd813\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"wp-widget-media_audio.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h5>Episodio 1: Odisea de un diagn\u00f3stico<\/h5><audio class=\"wp-audio-shortcode\" id=\"audio-14833-1\" preload=\"none\" style=\"width: 100%;\" controls=\"controls\"><source type=\"audio\/mpeg\" src=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_100_T2_01_Rareza-Singular_Odisea-de-un-Diagnostico_26022024.mp3?_=1\" \/><source type=\"audio\/mpeg\" src=\"http:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_100_T2_01_Rareza-Singular_Odisea-de-un-Diagnostico_26022024.mp3?_=1\" \/><a href=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_100_T2_01_Rareza-Singular_Odisea-de-un-Diagnostico_26022024.mp3\">https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_100_T2_01_Rareza-Singular_Odisea-de-un-Diagnostico_26022024.mp3<\/a><\/audio>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fb0852b elementor-widget elementor-widget-text-editor\" data-id=\"fb0852b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Al d\u00eda, miles de ni\u00f1as y ni\u00f1os nacen con una enfermedad gen\u00e9tica que puede tardar mucho tiempo en ser diagnosticada; sin embargo, en muchos casos, esto no se trata de negligencia o incapacidad profesional. En este episodio, averiguaremos todo lo que hay detr\u00e1s del diagn\u00f3stico de una enfermedad rara.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-830d9ad elementor-widget elementor-widget-wp-widget-media_audio\" data-id=\"830d9ad\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"wp-widget-media_audio.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h5>Episodio 2: Falso diagn\u00f3stico<\/h5><audio class=\"wp-audio-shortcode\" id=\"audio-14833-2\" preload=\"none\" style=\"width: 100%;\" controls=\"controls\"><source type=\"audio\/mpeg\" src=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_101_T2_02_Rareza-singular_Falso-Diagnostico_27022024.mp3?_=2\" \/><source type=\"audio\/mpeg\" src=\"http:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_101_T2_02_Rareza-singular_Falso-Diagnostico_27022024.mp3?_=2\" \/><a href=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_101_T2_02_Rareza-singular_Falso-Diagnostico_27022024.mp3\">https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_101_T2_02_Rareza-singular_Falso-Diagnostico_27022024.mp3<\/a><\/audio>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1328633 elementor-widget elementor-widget-text-editor\" data-id=\"1328633\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Al enfrentarse a una enfermedad rara, un diagn\u00f3stico no siempre es garant\u00eda de que un tratamiento es el adecuado; lo cual, puede desencadenar consecuencias graves, e incluso, mortales. Pero\u2026 \u00bfqu\u00e9 pasar\u00eda si esto pudiera evitarse? En este episodio, conoceremos m\u00e1s al respecto.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-71435dc elementor-widget elementor-widget-wp-widget-media_audio\" data-id=\"71435dc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"wp-widget-media_audio.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h5>Episodio 3: Cuidados paliativos<\/h5><audio class=\"wp-audio-shortcode\" id=\"audio-14833-3\" preload=\"none\" style=\"width: 100%;\" controls=\"controls\"><source type=\"audio\/mpeg\" src=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_102_T2_03_Rareza-singular_Un-soporte_28022024.mp3?_=3\" \/><source type=\"audio\/mpeg\" src=\"http:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_102_T2_03_Rareza-singular_Un-soporte_28022024.mp3?_=3\" \/><a href=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_102_T2_03_Rareza-singular_Un-soporte_28022024.mp3\">https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_102_T2_03_Rareza-singular_Un-soporte_28022024.mp3<\/a><\/audio>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-631e6d2 elementor-widget elementor-widget-text-editor\" data-id=\"631e6d2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>No s\u00f3lo es un tratamiento f\u00edsico para el paciente; tambi\u00e9n, es un tratamiento mental y espiritual para las familias. En este episodio, conoceremos algunas de las redes de apoyo que pueden ayudar a sobrellevar la incertidumbre detr\u00e1s del padecer una enfermedad rara.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-62ba7ee elementor-widget elementor-widget-wp-widget-media_audio\" data-id=\"62ba7ee\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"wp-widget-media_audio.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h5>Episodio 4: Correr por el Lesch-Nyhan<\/h5><audio class=\"wp-audio-shortcode\" id=\"audio-14833-4\" preload=\"none\" style=\"width: 100%;\" controls=\"controls\"><source type=\"audio\/mpeg\" src=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_103_T2_04_Raeza-singular_Correr-por-El-Lesch-Nyhan_29022024.mp3?_=4\" \/><source type=\"audio\/mpeg\" src=\"http:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_103_T2_04_Raeza-singular_Correr-por-El-Lesch-Nyhan_29022024.mp3?_=4\" \/><a href=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_103_T2_04_Raeza-singular_Correr-por-El-Lesch-Nyhan_29022024.mp3\">https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_103_T2_04_Raeza-singular_Correr-por-El-Lesch-Nyhan_29022024.mp3<\/a><\/audio>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4f3a4a9 elementor-widget elementor-widget-text-editor\" data-id=\"4f3a4a9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Al no encontrar redes de apoyo para el tratamiento e investigaci\u00f3n de una enfermedad rara, las familias deciden crear v\u00ednculos nuevos para combatir el desconocimiento y la indiferencia. En este episodio, conoceremos a Gaby y su fundaci\u00f3n: Amor y Fuerza Lesch-Nyhan, creada para ni\u00f1os y familias que padecen esta enfermedad. <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bca5933 elementor-widget elementor-widget-wp-widget-media_audio\" data-id=\"bca5933\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"wp-widget-media_audio.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h5>Episodio 5: No somos n\u00fameros<\/h5><audio class=\"wp-audio-shortcode\" id=\"audio-14833-5\" preload=\"none\" style=\"width: 100%;\" controls=\"controls\"><source type=\"audio\/mpeg\" src=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_104_T2_05_Rareza-singular_No-somos-numeros_01032024.mp3?_=5\" \/><source type=\"audio\/mpeg\" src=\"http:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_104_T2_05_Rareza-singular_No-somos-numeros_01032024.mp3?_=5\" \/><a href=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_104_T2_05_Rareza-singular_No-somos-numeros_01032024.mp3\">https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Bingo_104_T2_05_Rareza-singular_No-somos-numeros_01032024.mp3<\/a><\/audio>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-67fc9e9 elementor-widget elementor-widget-text-editor\" data-id=\"67fc9e9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>En el a\u00f1o 2017, el Consejo de Salubridad General de Salud busc\u00f3 crear un padr\u00f3n que censara a todas las personas que padecieran una enfermedad rara. Sin embargo, este proyecto se cancel\u00f3 de manera inexplicable. En este episodio, veremos cu\u00e1l es la importancia del apoyo gubernamental y social para combatir y tratar las enfermedades raras.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-44eeaad elementor-widget__width-initial elementor-widget-mobile__width-initial elementor-widget elementor-widget-heading\" data-id=\"44eeaad\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">FICHA T\u00c9CNICA <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-ab9010a e-con-full elementor-hidden-mobile e-flex e-con e-child\" data-id=\"ab9010a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-801a20a elementor-widget elementor-widget-heading\" data-id=\"801a20a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Tambi\u00e9n te puede interesar...<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-c48076f e-flex e-con-boxed e-con e-parent\" data-id=\"c48076f\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-ae2161f e-con-full e-flex e-con e-child\" data-id=\"ae2161f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-2943c23 e-con-full e-flex e-con e-child\" data-id=\"2943c23\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a6de0ac elementor-widget__width-initial elementor-widget elementor-widget-image\" data-id=\"a6de0ac\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"wp-caption\">\n\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"512\" height=\"512\" src=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Enfermedads-raras-vg-2-min.jpg\" class=\"attachment-full size-full wp-image-14840\" alt=\"Enfermedades raras: Odisea diagn\u00f3stica - IMER\" srcset=\"https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Enfermedads-raras-vg-2-min.jpg 512w, https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Enfermedads-raras-vg-2-min-300x300.jpg 300w, https:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2024\/03\/Enfermedads-raras-vg-2-min-150x150.jpg 150w\" sizes=\"(max-width: 512px) 100vw, 512px\" \/>\t\t\t\t\t\t\t\t\t\t\t<figcaption class=\"widget-image-caption wp-caption-text\"><\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-bffc37d e-con-full e-flex e-con e-child\" data-id=\"bffc37d\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-4fceb73 e-con-full e-flex e-con e-child\" data-id=\"4fceb73\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-cc7e4ad elementor-widget elementor-widget-heading\" data-id=\"cc7e4ad\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">FICHA T\u00c9CNICA<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7b50cc0 elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"7b50cc0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>LOCUCI\u00d3N: <\/strong>Alejandro Joseph y Laura Lezama<\/p><p><strong>PRODUCCI\u00d3N<\/strong>: Hern\u00e1n N\u00e1jera<\/p><p><strong>GUION\/ESCALETA:<\/strong> Miguel del Castillo,\u00a0 Laura Lezama y Alejandro Joseph<\/p><p><strong>MUSICALIZACI\u00d3N<\/strong>: Hern\u00e1n N\u00e1jera<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-a4266f2 e-con-full elementor-hidden-mobile e-flex e-con e-child\" data-id=\"a4266f2\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-71dd978 e-con-full elementor-hidden-mobile e-flex e-con e-child\" data-id=\"71dd978\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-7844f8a e-flex e-con-boxed e-con e-parent\" data-id=\"7844f8a\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-391b713 e-con-full e-flex e-con e-child\" data-id=\"391b713\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b92ff97 elementor-widget__width-initial elementor-widget-mobile__width-initial elementor-widget elementor-widget-heading\" data-id=\"b92ff97\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">FUENTES<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b475fbf elementor-widget elementor-widget-text-editor\" data-id=\"b475fbf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>ENTREVISTAS<\/strong>:<\/p><ul><li style=\"font-weight: 400\">Melania Abreu, m\u00e9dica especialista en Gen\u00e9tica M\u00e9dica.<\/li><li style=\"font-weight: 400\">Jaqueline Tovar, fundadora de la iniciativa Pensemos en Cebras.<\/li><li style=\"font-weight: 400\">Ver\u00f3nica Flores, m\u00e9dica ginecobstetra.<\/li><li style=\"font-weight: 400\">Jorge Ramos Guerrero, m\u00e9dico pediatra.Gaby Ponce, fundadora de la fundaci\u00f3n Amor y Fuerza Lesch-Nyhan.<\/li><\/ul><p><strong>VIDEOS:<\/strong><\/p><ul><li style=\"font-weight: 400\"><a href=\"https:\/\/www.facebook.com\/SecretariadeSaludMX\/videos\/567071467880063\/\"><span style=\"font-weight: 400\">Secretar\u00eda de Salud &#8211; Primer Censo Nacional de Pacientes con Enfermedades Raras<\/span><\/a><\/li><\/ul><p><strong>DOCUMENTOS:<\/strong><\/p><ul><li><a href=\"https:\/\/www.gob.mx\/salud\/articulos\/que-son-las-enfermedades-raras-193280\">Gobierno de M\u00e9xico &#8211; \u00bfQu\u00e9 son las enfermedades raras?<\/a><\/li><li><a href=\"https:\/\/unamglobal.unam.mx\/global_revista\/aquejan-20-enfermedades-raras-a-la-poblacion-mexicana\/\">UNAM Global &#8211; Aquejan 20 enfermedades raras a la poblaci\u00f3n mexicana<\/a><\/li><li><a href=\"https:\/\/animalpolitico.com\/salud\/enfermedades-raras-mexico-censo-personas\">Animal Politico &#8211; Pacientes con enfermedades raras en M\u00e9xico viven sin registro ni atenci\u00f3n p\u00fablica, tras promesa de gobierno<\/a><\/li><li><a href=\"http:\/\/csg.gob.mx\/descargas\/pdf\/comunicados\/CSG_Comunicado_N._4_Reconoce_Enfermedades_raras.pdf\">Gobierno de M\u00e9xico &#8211; Consejo de Salubridad reconoce las enfermedades raras incorporadas en la clasificaci\u00f3n de la Organizaci\u00f3n Mundial de la Salud<\/a><\/li><li><a href=\"https:\/\/www.orpha.net\/pdfs\/data\/patho\/Han\/Int\/es\/SindromeLesch-Nyhan_Es_es_HAN_ORPHA510.pdf\">Orphanet \u2013 La enfermedad del Lesch-Nyhan<\/a><\/li><\/ul><p><strong>REDES:<\/strong><\/p><ul><li style=\"font-weight: 400\"><a href=\"https:\/\/cureangelman.lat\/\"><span style=\"font-weight: 400\">https:\/\/cureangelman.lat\/<\/span><\/a><span style=\"font-weight: 400\">\u00a0<\/span><\/li><li style=\"font-weight: 400\"><a href=\"https:\/\/cebrasmexico.org.mx\/\"><span style=\"font-weight: 400\">https:\/\/cebrasmexico.org.mx\/<\/span><\/a><span style=\"font-weight: 400\">\u00a0<\/span><\/li><li style=\"font-weight: 400\"><a href=\"https:\/\/enfermedadesraras.liigh.unam.mx\/\"><span style=\"font-weight: 400\">https:\/\/enfermedadesraras.liigh.unam.mx\/<\/span><\/a><\/li><li style=\"font-weight: 400\"><a href=\"https:\/\/www.instagram.com\/amoryfuerzaleschnyhan\/\">https:\/\/www.instagram.com\/amoryfuerzaleschnyhan\/<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-f01c544 e-flex e-con-boxed e-con e-child\" data-id=\"f01c544\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-3c57c26 elementor-widget elementor-widget-heading\" data-id=\"3c57c26\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Comparte este contenido<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-005e618 elementor-widget elementor-widget-share-buttons\" data-id=\"005e618\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"share-buttons.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4c3aaf8 elementor-widget elementor-widget-post-navigation\" data-id=\"4c3aaf8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"post-navigation.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-marvy_enable_drop_animation=\"false\" data-marvy_enable_fancy_rotate=\"false\" data-marvy_enable_flying_object=\"false\" data-marvy_enable_ripples_animation=\"false\" data-marvy_enable_waves_animation=\"false\" data-marvy_enable_rings_animation=\"false\" data-marvy_enable_topology_animation=\"false\" data-marvy_enable_gradient_animation=\"false\" data-marvy_enable_snow_animation=\"false\" data-marvy_enable_firework_animation=\"false\" data-marvy_enable_cloud_animation=\"false\" class=\"elementor-element elementor-element-b57256a e-con-full elementor-hidden-mobile e-flex e-con e-child\" data-id=\"b57256a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>   [audio mp3=\"http:\/\/www.imer.mx\/programas\/wp-content\/uploads\/sites\/77\/2023\/10\/Clic-en-ver-mas-2.mp3\"][\/audio]<br \/>\n&nbsp;<\/p>\n<p>Por lo menos, 1 de cada 10 mil personas padecen una enfermedad de la que nadie sabe nada. Gran parte de ellas, enfrentan un ambiente de incertidumbre, soledad y muchos sacrificios. En el marco del D\u00eda Mundial de las Enfermedades Raras nos acercamos a algunas personas que viven y tratan con algunas enfermedades desconocidas, y les preguntamos cu\u00e1les son sus procesos para conocerlas, investigarlas y hacerles frente.<\/p>\n","protected":false},"author":184,"featured_media":14840,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"wp_popup_display_lightbox":0,"wp_popup_suppress":"","wp_popup_trigger":"","wp_popup_trigger_amount":0,"wp_popup_disable_on_mobile":false,"h5ap_radio_sources":[],"footnotes":""},"categories":[37],"tags":[71],"class_list":["post-14833","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-bingo","tag-salud"],"_links":{"self":[{"href":"https:\/\/www.imer.mx\/programas\/wp-json\/wp\/v2\/posts\/14833","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.imer.mx\/programas\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.imer.mx\/programas\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.imer.mx\/programas\/wp-json\/wp\/v2\/users\/184"}],"replies":[{"embeddable":true,"href":"https:\/\/www.imer.mx\/programas\/wp-json\/wp\/v2\/comments?post=14833"}],"version-history":[{"count":2,"href":"https:\/\/www.imer.mx\/programas\/wp-json\/wp\/v2\/posts\/14833\/revisions"}],"predecessor-version":[{"id":17276,"href":"https:\/\/www.imer.mx\/programas\/wp-json\/wp\/v2\/posts\/14833\/revisions\/17276"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.imer.mx\/programas\/wp-json\/wp\/v2\/media\/14840"}],"wp:attachment":[{"href":"https:\/\/www.imer.mx\/programas\/wp-json\/wp\/v2\/media?parent=14833"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.imer.mx\/programas\/wp-json\/wp\/v2\/categories?post=14833"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.imer.mx\/programas\/wp-json\/wp\/v2\/tags?post=14833"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}